In the realm of speech-language pathology, one of the most significant advancements for children with severe multiple disabilities has been the development and use of cochlear implants (CIs). These devices have opened up a world of sound and communication for children who previously faced profound hearing impairments alongside other severe disabilities. But what outcomes truly matter to these children and their families?
A recent study titled Outcomes That Matter for Children With Severe Multiple Disabilities who use Cochlear Implants: The First Step in an Instrument Development Process sheds light on this very question. This research, conducted by Hayward, Ritter, Grueber, and Howarth, focuses on identifying the outcomes that parents find most significant post-cochlear implantation. Let's dive into the key findings and how they can inform your practice.
Key Findings from the Study
The study involved interviews with mothers of children who had received cochlear implants within the last ten years. These children had profound hearing impairments and additional severe disabilities. The parents reported several notable gains post-implantation:
- Increased awareness of sound
- Improved receptive and expressive communication
- Enhanced connectedness within the family and community
- Better quality of life
Interestingly, when asked to rank these outcomes by importance, parents prioritized child affect (happiness and emotional well-being), connectedness/inclusion, and receptive communication above all else. This indicates that while technical improvements in hearing and speech are crucial, the overall well-being and social inclusion of the child are paramount to families.
Implementing These Findings in Practice
As practitioners, it's essential to align our goals with those of the families we serve. Here are some strategies to consider:
- Focus on Holistic Outcomes: While it's important to track improvements in hearing and speech, also pay attention to the child's emotional well-being and social interactions. These factors significantly impact the child's overall quality of life.
- Engage Families in the Process: Regularly communicate with parents to understand their priorities and observations. Their insights can guide your therapeutic interventions and help tailor your approach to meet the child's unique needs.
- Broaden Assessment Tools: Traditional assessment tools may not capture the subtle yet meaningful changes in children with multiple disabilities. Consider developing or utilizing instruments that reflect the outcomes valued by families, such as increased happiness and social inclusion.
Encouraging Further Research
The study by Hayward and colleagues is just the beginning. More research is needed to develop reliable instruments that capture the full spectrum of benefits experienced by children with severe multiple disabilities who use cochlear implants. By contributing to this body of research, practitioners can help ensure that all children receive the support and recognition they deserve.
To read the original research paper, please follow this link: Outcomes That Matter for Children With Severe Multiple Disabilities who use Cochlear Implants: The First Step in an Instrument Development Process
