According to the study, parental advocacy follows a pathway that includes:
- Expressing concerns
- Seeking help, assessment, and diagnosis
- Acquiring services
- Removing barriers
- Developing advocacy skills
Here are some actionable insights for practitioners:
1. Enhance Communication and Listening Skills
Parents often express concerns about their child's behavior and developmental milestones. Practitioners should actively listen and validate these concerns, providing a supportive environment where parents feel heard. Clear and empathetic communication can significantly reduce the frustration parents may experience during the initial stages of seeking help.
2. Facilitate Access to Resources
Parents need timely access to diagnostic and intervention services. Practitioners can play a crucial role by guiding parents through the healthcare and educational systems, helping them navigate bureaucratic hurdles, and connecting them with relevant resources. Early intervention is critical for positive outcomes in children with ASD.
3. Support Skill Development
The study highlights the importance of developing advocacy skills among parents. Practitioners can offer workshops or one-on-one coaching sessions to help parents acquire skills such as effective communication, organization, and problem-solving. These skills empower parents to advocate more effectively for their children.
4. Address Barriers and Challenges
Parents face various challenges, including time constraints, financial burdens, and lack of knowledge. Practitioners can assist by providing flexible scheduling options, offering information on financial aid programs, and creating educational materials that are easy to understand. Reducing these barriers can enhance the overall advocacy experience for parents.
5. Promote Collaborative Partnerships
Building a collaborative relationship between practitioners and parents is essential. This partnership should be based on mutual respect and shared goals. Regular meetings, open communication, and joint decision-making can foster a more effective advocacy process, ultimately benefiting the child.
To read the original research paper, please follow this link: "I Know How to Advocate": Parents’ Experiences in Advocating for Children and Youth Diagnosed With Autism Spectrum Disorder.
