The experiences of families raising autistic children provide critical insights that can guide practitioners in improving their therapeutic approaches. A recent phenomenological study titled "The experiences of families raising autistic children: A phenomenological study" sheds light on the multifaceted challenges these families face. This blog aims to translate the findings of this study into actionable strategies for practitioners providing online therapy services to schools, like those offered by TinyEYE.
Understanding Family Challenges
The study identified two primary categories of experiences: family-related issues and education and treatment problems. Family-related issues were further divided into three subcategories:
- Financial Problems
- Psychological Issues
- Family Relationships
Financial Problems
Financial burdens are a significant stressor for families with autistic children. High costs of treatment, limited insurance coverage, and transportation expenses were commonly cited. Practitioners can help by advocating for more comprehensive insurance policies and exploring financial aid options for families.
Psychological Issues
Parents often experience high levels of stress, depression, and guilt. Implementing regular mental health check-ins and providing access to counseling services can be beneficial. Online support groups facilitated by therapists can also offer a sense of community and shared understanding.
Family Relationships
Marital conflicts and strained sibling relationships are prevalent. Family therapy sessions can help address these issues, fostering better communication and mutual support among family members.
Addressing Education and Treatment Problems
The study also highlighted significant issues related to the education and treatment of autistic children, including:
- Schooling
- Transportation
- Quality of Facilities
Schooling
Parents reported dissatisfaction with the quality of autism-specific schools and the lack of inclusion in regular schools. Practitioners can work with schools to develop more inclusive educational programs and advocate for specialized training for teachers.
Transportation
Transportation issues, including the lack of suitable school buses and the high cost of private transport, were common. Collaborating with local authorities to improve transportation options can alleviate some of these burdens.
Quality of Facilities
Many parents were dissatisfied with the quality of services provided by clinics. Practitioners should strive to ensure that their online therapy services meet high standards of care, including regular training for therapists and continuous improvement based on feedback from families.
Encouraging Further Research
The study underscores the importance of understanding the lived experiences of families raising autistic children. Practitioners are encouraged to stay updated with the latest research and consider conducting their own studies to better tailor their services to the needs of these families.
In conclusion, by addressing the financial, psychological, and relational challenges faced by families, and improving educational and treatment services, practitioners can significantly enhance the quality of life for autistic children and their families. To read the original research paper, please follow this link: The experiences of families raising autistic children: A phenomenological study.
