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Implementing Research Insights to Improve Outcomes for Children with Cleft Lip and Palate

Implementing Research Insights to Improve Outcomes for Children with Cleft Lip and Palate

As a practitioner in the field of speech-language pathology, staying informed about the latest research is crucial for providing the best possible care to your clients. One significant area of concern is the stigma faced by parents of children with cleft lip and palate (CL/P). A recent study titled "Factors Associated With Perception of Stigma Among Parents of Children With Cleft Lip and Palate: Cross-Sectional Study" provides valuable insights that can help practitioners improve their skills and support these families more effectively.

Understanding the Research Findings

The study conducted a cross-sectional survey of 104 parents of children diagnosed with CL/P in two hospitals in China. The researchers used various scales to measure stigma, depression, and social anxiety among these parents. Key findings from the study include:

These factors collectively explained 40.4% of the variance in perceived stigma, highlighting the complex interplay of educational, psychological, and medical factors.

Implications for Practitioners

As a practitioner, you can implement these findings in several ways to improve outcomes for children with CL/P and their families:

1. Provide Comprehensive Support

Offer comprehensive nursing care and presurgical support to alleviate social anxiety and reduce perceived stigma. This approach can help parents feel more confident and less isolated.

2. Focus on Education

Parents with higher education levels perceived less stigma. Therefore, providing educational resources about CL/P can empower parents and reduce their feelings of isolation and stigma.

3. Address Psychological Needs

Screen for depression and social anxiety among parents and provide appropriate referrals for mental health support. Addressing these psychological needs can significantly reduce perceived stigma.

4. Encourage Community Support

Facilitate connections between parents through support groups or community organizations. Sharing experiences and advice can help parents feel less isolated and more supported.

Encouraging Further Research

While this study provides valuable insights, further research is needed to explore other factors that may influence stigma and to develop targeted interventions. Encouraging your colleagues to engage in research can help build a more comprehensive understanding of the challenges faced by families of children with CL/P.

To read the original research paper, please follow this link: Factors Associated With Perception of Stigma Among Parents of Children With Cleft Lip and Palate: Cross-Sectional Study.


Citation: Mavragani, A., Sarhan, M., Zhang, Y., Zhang, X., Jiang, J., Xie, W., & Xiang, D. (2024). Factors Associated With Perception of Stigma Among Parents of Children With Cleft Lip and Palate: Cross-Sectional Study. JMIR Formative Research, 8(1), e53353. https://doi.org/10.2196/53353
Marnee Brick, President, TinyEYE Therapy Services

Author's Note: Marnee Brick, TinyEYE President, and her team collaborate to create our blogs. They share their insights and expertise in the field of Speech-Language Pathology, Online Therapy Services and Academic Research.

Connect with Marnee on LinkedIn to stay updated on the latest in Speech-Language Pathology and Online Therapy Services.

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