Autism Spectrum Disorder (ASD) presents significant challenges for both individuals and their carers, particularly in accessing and affording necessary services. A recent study titled "Access and cost of services for autistic children and adults in Italy: a carers’ perspective" provides valuable insights that can inform practitioners on how to improve outcomes for autistic children.
Key Findings from the Study
The study, conducted as part of the Autism Spectrum Disorder in the European Union (ASDEU) project, surveyed 303 carers of autistic individuals in Italy. Key findings include:
- Carers spent an average of 58.84 hours per week on caregiving duties.
- 82% of carers had to take work or school absences to care for autistic individuals, averaging 15.56 days.
- Educational support was primarily provided by support teachers, averaging 18.16 hours per week.
- Psychologists, psychomotor therapists, and speech therapists were frequently paid out-of-pocket by carers.
Implications for Practitioners
The data highlights several areas where practitioners can focus to improve outcomes for autistic children:
1. Enhanced Training for Support Teachers
Given the significant role of support teachers, comprehensive training programs focusing on the specific needs of autistic individuals can be beneficial. This training should include effective learning methods tailored to autistic children and strategies to foster improved socialization.
2. Multidisciplinary Approach
The study underscores the importance of a multidisciplinary approach, involving educational psychologists, speech therapists, and psychomotor therapists. Practitioners should collaborate to provide holistic care that addresses both educational and therapeutic needs.
3. Financial Assistance Programs
Since many services are paid out-of-pocket, establishing financial assistance programs can alleviate the economic burden on families. Practitioners can advocate for such programs and help families navigate available resources.
4. Support for Carers
The high caregiving load on carers indicates a need for support services such as counseling and self-help groups. Practitioners should be aware of these needs and provide or recommend appropriate support services.
Encouraging Further Research
While the study provides valuable insights, further research is essential to develop effective strategies for reducing costs and improving the quality of life for autistic individuals and their families. Practitioners are encouraged to engage in research initiatives and contribute to the growing body of knowledge in this field. To read the original research paper, please follow this link:
Access and cost of services for autistic children and adults in Italy: a carers’ perspective.
