The economic burden on parents and caregivers of children with cerebral palsy (CP) is substantial, as evidenced by a recent study conducted in Malaysia. The study, titled The Economic Burden and Determinant Factors of Parents/Caregivers of Children with Cerebral Palsy in Malaysia: A Mixed Methods Study, reveals significant financial strains and identifies key determinants influencing this burden. For practitioners providing online therapy services, such as those at TinyEYE, understanding these findings can enhance support for families and improve therapeutic outcomes.
Key Findings from the Study
The study estimated the annual median total economic burden on parents/caregivers per child with CP to be RM52,540.00 (~USD12,515.03). The breakdown of costs includes:
- Indirect costs (productivity loss): RM28,800.00 (~USD6860.16)
- Developmental costs: RM16,200.00 (~USD3858.84)
- Direct healthcare costs: RM4540.00 (~USD1081.43)
- Direct non-healthcare costs: RM3000.00 (~USD714.60)
Implications for Practitioners
Practitioners can leverage these findings to better support families in several ways:
- Personalized Support: Recognize the significant indirect costs families face, such as productivity loss, and offer flexible scheduling or teletherapy options to accommodate parents' work commitments.
- Resource Guidance: Provide information on financial aid and support programs available to families, including government and non-governmental organizations' resources.
- Holistic Approach: Address not only the child's therapeutic needs but also the overall well-being of the family, considering the socioeconomic factors that impact their financial burden.
Encouraging Further Research
While this study provides valuable insights, there is a need for more research to explore the long-term effects of financial strain on families and the effectiveness of different support mechanisms. Practitioners are encouraged to participate in or initiate research projects that can further illuminate these issues and lead to better-informed policy decisions.
To read the original research paper, please follow this link: The Economic Burden and Determinant Factors of Parents/Caregivers of Children with Cerebral Palsy in Malaysia: A Mixed Methods Study.
