As a speech-language pathologist, understanding the pathways and challenges parents face when seeking care for their children with Autism Spectrum Disorder (ASD) is crucial. A recent study titled Parental care-seeking pathway and challenges for autistic spectrum disorders children: A mixed method study from Bhubaneswar, Odisha provides valuable insights that can enhance our practice and encourage further research.
The study reveals that many parents initially recognize social difficulties in their children, but lack of awareness about ASD often delays diagnosis and intervention. Here are key findings and actionable steps for practitioners:
Key Findings
- Initial Symptom Recognition: Parents typically notice unusual behaviors between 1.2 to 3 years of age, with social difficulties being the most common initial symptom.
- Consultation Pathways: Most parents first consult pediatricians, who then refer them to child psychiatrists or specialized centers, often leading to a delay in diagnosis.
- Barriers to Diagnosis: Lack of awareness, limited availability of services, and the need to consult multiple professionals contribute to delayed diagnosis.
- Therapeutic Interventions: Speech therapy and sensory integration therapy are the most commonly received treatments, with many parents using a combination of both.
Actionable Steps for Practitioners
- Increase Awareness: Educate parents and communities about the early signs of ASD and the importance of early diagnosis and intervention.
- Streamline Referral Processes: Develop clear referral pathways to ensure timely diagnosis and reduce the need for parents to consult multiple professionals.
- Enhance Accessibility: Advocate for more local services and specialized centers to reduce the burden of long-distance travel for families.
- Support Families: Provide resources and support groups for parents to help them navigate the diagnosis and treatment process.
By implementing these strategies, practitioners can help improve the outcomes for children with ASD and support their families more effectively.
To read the original research paper, please follow this link: Parental care-seeking pathway and challenges for autistic spectrum disorders children: A mixed method study from Bhubaneswar, Odisha.
