The research article "Distance delivery of a parent-implemented language intervention for young boys with fragile X syndrome" by Bullard, McDuffie, and Abbeduto (2018) offers promising insights for speech-language pathologists. This study demonstrates the effectiveness of using distance video teleconferencing to deliver a 12-week parent-implemented language intervention for boys aged 5 to 7 with fragile X syndrome (FXS). The intervention aimed to teach mothers verbally responsive language support strategies during shared book reading activities.
Fragile X syndrome is a genetic disorder that results in significant cognitive delays, language impairments, and behavioral challenges. Traditional center-based intervention programs often aren't accessible to many families affected by FXS, making remote interventions particularly valuable.
The study employed a multiple baseline design across three mother-son dyads to assess the intervention's effectiveness. Key findings include:
- Generalized improvements in targeted maternal strategy use.
- Enhanced child spoken language measures.
- Feasibility of collecting pre- and post-treatment assessments remotely.
Here are actionable steps for practitioners based on this research:
1. Implement Parent-Implemented Interventions
Teaching parents to use verbally responsive strategies can significantly impact a child's language development. Strategies include:
- Expansions: Adding new semantic or grammatical information to the child's comments.
- Open-ended Questions: Encouraging the child to elaborate on story content.
- Intonation Prompts: Using expectant waiting to prompt the child to complete an utterance.
2. Utilize Distance Technology
Video teleconferencing tools like Skype can effectively deliver interventions and collect data, making services accessible to families regardless of their location. This approach also allows for observing families in their natural home environment, which can yield more representative data.
3. Measure Outcomes with Expressive Language Sampling
Use standardized yet naturalistic procedures like expressive language sampling to evaluate spoken language performance. This can provide a more accurate picture of a child's language abilities in everyday contexts.
4. Encourage Consistency and Generalization
Ensure that parents continue to practice the intervention strategies consistently. Consider extending the intervention period or providing booster sessions to help maintain gains. Encouraging the use of strategies in various contexts can also promote generalization.
The study's findings underscore the potential for remote, parent-implemented interventions to make a meaningful difference in the lives of children with FXS. By leveraging distance technology and focusing on data-driven strategies, practitioners can provide effective support to families who might otherwise lack access to specialized services.
To read the original research paper, please follow this link: Distance delivery of a parent-implemented language intervention for young boys with fragile X syndrome.