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Revolutionizing Language Intervention for Children with Fragile X Syndrome: A Data-Driven Approach

Revolutionizing Language Intervention for Children with Fragile X Syndrome: A Data-Driven Approach

The research article "Distance delivery of a parent-implemented language intervention for young boys with fragile X syndrome" by Bullard, McDuffie, and Abbeduto (2018) offers promising insights for speech-language pathologists. This study demonstrates the effectiveness of using distance video teleconferencing to deliver a 12-week parent-implemented language intervention for boys aged 5 to 7 with fragile X syndrome (FXS). The intervention aimed to teach mothers verbally responsive language support strategies during shared book reading activities.

Fragile X syndrome is a genetic disorder that results in significant cognitive delays, language impairments, and behavioral challenges. Traditional center-based intervention programs often aren't accessible to many families affected by FXS, making remote interventions particularly valuable.

The study employed a multiple baseline design across three mother-son dyads to assess the intervention's effectiveness. Key findings include:

Here are actionable steps for practitioners based on this research:

1. Implement Parent-Implemented Interventions

Teaching parents to use verbally responsive strategies can significantly impact a child's language development. Strategies include:

2. Utilize Distance Technology

Video teleconferencing tools like Skype can effectively deliver interventions and collect data, making services accessible to families regardless of their location. This approach also allows for observing families in their natural home environment, which can yield more representative data.

3. Measure Outcomes with Expressive Language Sampling

Use standardized yet naturalistic procedures like expressive language sampling to evaluate spoken language performance. This can provide a more accurate picture of a child's language abilities in everyday contexts.

4. Encourage Consistency and Generalization

Ensure that parents continue to practice the intervention strategies consistently. Consider extending the intervention period or providing booster sessions to help maintain gains. Encouraging the use of strategies in various contexts can also promote generalization.

The study's findings underscore the potential for remote, parent-implemented interventions to make a meaningful difference in the lives of children with FXS. By leveraging distance technology and focusing on data-driven strategies, practitioners can provide effective support to families who might otherwise lack access to specialized services.

To read the original research paper, please follow this link: Distance delivery of a parent-implemented language intervention for young boys with fragile X syndrome.


Citation: Bullard, L., McDuffie, A., & Abbeduto, L. (2018). Distance delivery of a parent-implemented language intervention for young boys with fragile X syndrome. Autism & Developmental Language Impairments. https://doi.org/10.1177/2396941517728690
Marnee Brick, President, TinyEYE Therapy Services

Author's Note: Marnee Brick, TinyEYE President, and her team collaborate to create our blogs. They share their insights and expertise in the field of Speech-Language Pathology, Online Therapy Services and Academic Research.

Connect with Marnee on LinkedIn to stay updated on the latest in Speech-Language Pathology and Online Therapy Services.

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