As a practitioner dedicated to creating the best outcomes for children, it's crucial to stay informed about the latest research and how it can be applied to improve care. A recent study titled My child is growing and now? Exploring the environmental needs of children with congenital Zika syndrome according to their caregivers' perceptions provides valuable insights into the barriers and facilitators that impact children with congenital Zika syndrome (CZS). Understanding these factors can help practitioners tailor interventions more effectively.
The study utilized qualitative research methods to explore the environmental needs of children with CZS, differentiating barriers and facilitators from the perspective of their caregivers. Thematic analysis was used to categorize the data, and a Patient Public Involvement (PPI) approach was incorporated to validate the findings.
Key Findings
The study identified several critical environmental needs that either facilitate or hinder the participation of children with CZS:
- Social Support: While family relationships were generally positive, ableism within the family and community was a significant barrier.
- Access to Health Services: The availability of specialized health services and trained professionals was crucial. However, fragmented care and lack of qualified professionals in primary health care were major barriers.
- Spatial Accessibility and Assistive Technology: Adapted environments and assistive technologies like wheelchairs and glasses were facilitators, but lack of urban planning for accessibility and high costs were barriers.
- Medication Adherence and Dietary Routine: Medications and dietary adaptations had a positive impact, but high costs and lack of scientific protocols were challenges.
Implications for Practitioners
Practitioners can use these findings to improve their care strategies for children with CZS:
- Enhance Social Support: Work with families to address ableism and provide emotional support. Encourage community involvement to reduce social stigma.
- Improve Access to Health Services: Advocate for better coordination of care and more training for primary health care professionals. Utilize telehealth services like those provided by TinyEYE to bridge gaps in specialized care.
- Promote Spatial Accessibility: Collaborate with local governments to improve urban planning for accessibility. Educate families on available assistive technologies and how to acquire them.
- Support Medication and Dietary Needs: Help families navigate the complexities of medication adherence and dietary adaptations. Provide resources for affordable options and advocate for better public policies.
By incorporating these strategies, practitioners can create a more inclusive and supportive environment for children with CZS, ultimately enhancing their quality of life and participation in society.
To read the original research paper, please follow this link: My child is growing and now? Exploring the environmental needs of children with congenital Zika syndrome according to their caregivers' perceptions.
