Introduction
The evolving understanding of child disability has significantly transformed the approach to assessment and management over the past three decades. This shift has been particularly impactful in regions like East Africa, where cultural, economic, and social factors play a crucial role in care transitions. A recent workshop highlighted in the research article from the African Journal of Disability brings to light the critical importance of family-centred care and the International Classification of Functioning (ICF) framework in enhancing outcomes for children with disabilities.
Key Findings from the Workshop
The workshop, attended by a diverse group of stakeholders, including health professionals, parents, and government officials, identified several barriers to effective care for children with disabilities in East Africa. These include stigma, resource limitations, and disparities in access to care. However, the workshop also emphasized the potential of family-centred care and the ICF framework to address these challenges.
Implementing Family-Centred Care
Family-centred care is a transformative approach that recognizes the family as a central component in the care and development of a child with disabilities. This model encourages health professionals to work collaboratively with families, empowering them to participate actively in the care process. The workshop underscored the importance of educating families and communities about the benefits of this approach and fostering partnerships between families and healthcare providers.
Translating the ICF Framework into Practice
The ICF framework provides a comprehensive approach to understanding disability by focusing on body functions, activities, and participation. The workshop highlighted the need to integrate this framework into clinical practice in East Africa, with a particular emphasis on the 'F-words'—fitness, function, friendship, family factors, future, and fun. These concepts help families and clinicians focus on the child's abilities rather than limitations, promoting a more inclusive and supportive environment.
Recommendations for Practitioners
- Adopt the 'F-words' framework to enhance communication and understanding between families and healthcare providers.
- Develop and implement evidence-informed guidelines tailored to the local context to improve care delivery.
- Engage in continuous education and training to stay current with best practices in family-centred care.
- Advocate for policy changes that support the integration of family-centred care and the ICF framework at the community and national levels.
Conclusion
The workshop's outcomes emphasize the need for a paradigm shift in how disability care is approached in East Africa. By focusing on family-centred care and the ICF framework, practitioners can significantly enhance the quality of life for children with disabilities. This approach not only benefits the children but also empowers families and strengthens community support systems.
To read the original research paper, please follow this link: Child disability and family-centred care in East Africa: Perspectives from a workshop with stakeholders and health practitioners.
